Tracking health-related quality of life (HRQOL) helps identify health disparities, evaluate progress on achieving health goals, and informs public policy. Existing surveys are inaccessible for certain members of the target population and too lengthy for practical health surveillance.
HRQOL-IDD-16 is a theory-based, self-administered scale designed to be accessible to individuals with mild to moderate intellectual or developmental disabilities. HRQOL-IDD-16 features 16 items across 4 quality of life domains. This scale is a self-assessment—not proxy completed. This feature increases data accuracy to better inform program decision-making. While currently in a paper and pencil format, the scale could be transferred to an app or web platform.