Children and youth with special health care needs (CYSHCN), or those at increased risk for chronic physical, developmental, behavioral, or emotional conditions, have increased need for medical and education services. Coordination of care for CYSHCN often involves a large number of people, such as clinicians, care coordinators, family members, home care professionals, and school staff. Inadequate care coordination can lead to delays in diagnosis and treatment, diminished patient and physician satisfaction, increased cost of care, and reduced quality of life. Since CYSHCN receive care from health and non–health professionals working in different settings, care-related data can be fragmented across multiple information systems. As a result, finding the information needed to provide the best care can be daunting.
Medical Home Portal provides high-quality, family-focused, and peer-authored information for families and physicians. The portal offers clinical content for nearly 50 rare chronic conditions and provides access to community resources to improve quality of care and outcomes for CYSHCN. It incorporates clinical guidelines, alerts, recommendations for screening and links to local services.